Friday, December 16, 2022

A Birthday, a Decade, and an Ask

     Last week I celebrated my 64th birthday.  It was a good day, punctuated with nice birthday messages, cards, flowers and gifts. Thank you family and friends for acknowledging my day!

     This week is an important milestone, as well.  Ten years ago I was diagnosed with stage 4 lung cancer.  At that time, the survival expectation was 6-12 months from the time of diagnosis, with a 50/50 chance I'd be gone in 8 months. With the available treatments back then, my 5-year survival rate was 2%.   Needless to say, it was nearly impossible to be optimistic.  In the early days of my cancer journey my brother-in-law, Bob, said to me, "You just need to stay alive long enough for the next medical break-through."  At that time, with those odds, Bob's pollyanna comment felt silly, if not, a set-up for failure .  Who knew that his words would be prophetic? 

     Ten years later, I'm still here, being kept alive with a medication that wasn't even FDA approved when I starting taking it.  Since then, there are two more medications I can try when this one stops working for me, and a few more are in clinical trials.  So...I am staying alive long enough for the next medical break-though. (And yes...I have acknowledged to Bob that he was correct.) 

 

     Many life events have occurred and many incredible memories have been made in the last 10 years: 

Athens with Brigid and Jerry

 

 

  • Wynn, Nathan, Nina and I have all traveled to new places - Italy, Spain, Japan, Portugal, Israel, Greece, and more. 
 

 



Nina's residency graduation with Karo



  • Nina completed medical school and residency, and started a new job in Chicago.
 
 
 

 
 
 
 
Nathan and Banshamlak
 
 
  • Nathan has found his life-partner and a life for          himself in Israel, along with making us grandparents!  
 
Our grandson, Nori Leeyu

 

 
Our pond...
 
  • We moved to a single-story house and moved my aging mother in with us.  
Our garden...



  • I have been able to stay healthy enough to help my mother live out her life in our home, while being able to work and stay close to friends. My mom celebrated her 94th birthday last month.
 
 
 

 
 
 
 
 
 
 
Clair and Dicky's wedding
 
  • I've celebrated milestone birthdays of family members and friends, attended weddings, bat/bar mitzvahs, shared in the joys of new babies, while watching the babies in our life grow into children, children into teenagers and teenagers into full-fledged adults. 



Fishing with great-niece, Nora, at our pond


Life...

it hasn't been perfect, but it's been my honor to have lived this long.  

 

     In celebration of my BIRTHDAY and 10th CANCERVERSARY, please consider making a donation to support ROS1-driven cancer research.  This helps me and others with the same rare type of lung cancer that I have:

https://ros1ders-inc.networkforgood.com/projects/180747-luna-okada-s-fundraiser?from_wicked_finish=true

Saturday, October 22, 2022

An Occasion to Blog

     Although I’ve thought many times about posting a blog to update folks about how I’m doing, over the past couple of years I’ve been finding it difficult to carve out the proper time needed.  Today I’m making time. 

     Overall, my journey with cancer is going relatively well.  I continue taking my original oral chemotherapy, Xalkori, (crizotinib), and my follow-up scans and MRIs indicate that my disease is stable.  That’s the good news.  However, I’ve recognized noticeable decline in my overall well-being.  I feel weaker, experience more fatigue, and negotiate more days feeling generally crappy. Today, I’m blogging because I have wonderful news to share that has lifted my spirits and put my cancer on the backburner.

 

  

 

 Nori, hours old
 

 

 

     Earlier this month, our son, Nathan, and his partner, Banshamlak, had a baby boy.  They named him Nori Leeyu.  “Nori” is a nod to my father, Noriaki, and “Leeyu” means ‘unique, different, or extraordinary’ in Amharic.  Banshamlak is Israeli, but originally from Ethiopia.

 


 


      We just returned from a two week visit to Israel to meet our grandson.  I realize that it’s not possible to be objective about one’s first grandchild, but sweet Nori is beautiful. 


     

 


    Banshamlak, (right), is with her sister, Auntie Tova.  Banshi is part of a large, tightly-knit family.  It was so great to meet some of them for the first time on this trip, while getting to know others better.



 

 

 

 

                  ...with Auntie Nina



 

 

     Nearly ten years ago, when I began this cancer journey, I never – in a million years – thought I’d live long enough to be a grandmother.  And yet, here I am. 

 

     Thank you modern medicine and research!